The doctors told the parents that in order to prolong life, they had to use a variety of drugs to keep his condition under control.
But when the parents did have the option of taking the experimental drug called Doxycycline, they decided to give it.
In their study, doctors found that despite using the drug for a number of mont우리카지노hs, Long had never improved and was now worse than the doctors had forecast, with only a few years remaining to live.
The researchers also had their children watch their doctor to learn why he would never improve, before they were put back on the drug that had left them completely worse.
The findings have been published in the Journal of the American Academy of Child and Adolescent Psychiatry.